Fundamental Research
Genomics, genetic counseling/testing, and the possible diseases you may or may not have are undeniably overwhelming. Knowledge is a powerful tool to combat the fears or anxieties you may be experiencing. Use some of the websites below to better understand the basics of genetics, your genetic conditions, and the process of testing.
MedlinePlus is an online health resource for patients, families, and friends, with ranging topics from health to genetics to clinical trials, and many more. As a service of the world’s largest medical library, the National Library of Medicine, and the National Institutes of Health, MedlinePlus not only has a wealth of information but provides it in an “easy-to-read” and accessible way.
Labcorp provides a vast scientific source of expertise, research, and advancing medicine. This fantastic resource center provides multiple testing options and walk-in labs near you. With over 60,000 employees worldwide, they maintain services and support for all affected by healthcare. Labcorp is extremely socially aware, committing to digital accessibility and focusing on equality for marginalized groups. They also have a mobile app for appointments and results!
The CDC, the Centers for Disease Control and Prevention, is a 24/7 information center dedicated to saving lives. This well-known resource provides all kinds of information on genetic diseases and conditions to the public in an “understandable, accessible, and implementable manner as quickly as possible.”
The Genetic Support Foundation highlights the individual alongside their genetic healthcare. With information on all forms of genetic healthcare and how it may pertain to your specific situation, the foundation also provides genetic counseling appointments and websites on the genetic condition you may be struggling with.
GARD, the Genetic and Rare Diseases Information Center, a part of the National Institutes of Health, is a public health resource aimed at helping those living with a rare disease and their caregivers through free, reliable, and easy-to-understand information. Along with their disease directory, they also provide a hotline for questions about rare diseases!